It has been almost a month since my last post...sorry about that.
The last time I posted we had just increased Cal's medicine to keep him comfortable, and it WORKED! It kept him comfortable until about a week ago. We started noticing that he was crying out in pain again and could not make it the whole 8 hours. So, when the nurse came out Tuesday, we increased the medicine again. However, the nurse and doctor were pleased that we went until now without needing to increase the dose.
Over the past month, we have really had some good days. We have been able to spend time as a family and make memories with Cal that will last forever. One of my favorite memories was with the child life specialist from hospice. She came to our house one day to make 3D molds of Cal's hands and feet. They are absolutely precious! It is something we will have forever.
On another good note, Marcus is home with us now for a month! He just finished up his semester on Wednesday. No more classes and studying for finals! I could not be more proud of him. He works so hard and deserves a break. I am so excited to have him home. I look forward to more memories being made over the next month while he is home.
We continue to take it day by day, and thank God for every day we have with Cal. We praise God for keeping Cal comfortable and for giving us the strength we need to take care of our precious angel. God does not give us more than we can handle.
Thank you for all the love, support, and prayers we continue to get. Words can not express how grateful we are to all of you. We are truly BLESSED!
It was so good to finally meet all of you. You have a precious little boy and I will keep him in my heart forever. I wish I could do more. You are a beautiful family - thanks for sharing your time with me! Anne
ReplyDeleteI am so glad to hear Cal is doing well. I think about him and your family often and of course, pray for you often. I loved the Christmas card from your parents with little Cal on it and have it up in my office. Continue to enjoy and cherish every moment with that little angel. Hope to see you soon.
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