I hope everyone's new year is off to a great start so far. I am trying to be optimistic about our new year, but quite frankly, I am struggling.
Cal got sick two days after Christmas. He came down with a terrible cough and was congested. Quite honestly, it is what we have feared for awhile. The doctors have told us that kids with "mito" have a very weak immune system. We have known he can't get sick because his little body will have a hard time getting over it. That is why we stay home a lot. However, we also knew there was a good possibility this would be our last Christmas with Cal....so we loaded him up in the car and went and had Christmas with our families. We made it the best Christmas it could be considering the circumstances. The hospice nurse has assured us that he didn't get sick because we took him out of the house for Christmas.
As far as the cough and congestion go, it has gotten better. At first, he was so congested, he was choking on his saliva. No parent should have to experience that....it is terrifying! He did that for two days, and then, the medicine began to kick in, and he cleared up a little. However, it isn't gone for good. It is still there, but we are keeping it under control with medicine. The nurse is coming out daily to check on him. He is also having some other issues of concern, but unfortunately, there is no medicine for those issues. We just have to keep monitoring him and most importantly LOVING him!
It has definitely been a rough and emotional week for us. We continue to lean on God to guide us each day and give us the strength we need to care for Cal. Only He knows the plan for all of us!
Words can not express our gratitude and appreciation for all the love and support we continue to get from family and friends.
In His Name,