To our family and friends,
It is with an extremely sad heart and tear filled eyes that I must let everyone know that Cal's precious, little life here on Earth is coming to an end. The nurse can not tell us how long exactly (and to be quite honest...only God knows that). We do know that it is getting close, though. We would appreciate everyone's continued prayers for our family during this very sad and difficult time in our lives. Our faith continues to be strong in the Lord; however, it doesn't mean we understand.
I also wanted to let everyone know that because of the timing of Cal's decline, we will not be participating in the walk on February 5th in Houston. However, we still want to raise awareness for this disease that is taking so many precious, innocent lives. Please consider going to "The United Mitochondrial Disease Foundation" at www.umdf.org and donating to the foundation so that research can be done and a cure can be found! When you go to the website, there will be a picture of a little girl on the left, and it says "Donate Now". Click on her picture, and it will take you to the page where you can donate. It allows you to make a one time donation or a recurring donation. Also, at the bottom of the donation page, it allows you to make your donation a gift "In Honor" or "In Memory" of a child and who better than....Cal Hanna!
Remember to cherish every day you have with the ones you love because it could all be gone tomorrow.
In His Name,
Courtney
Friday, January 14, 2011
Tuesday, January 4, 2011
Happy New Year....not so far for us
I hope everyone's new year is off to a great start so far. I am trying to be optimistic about our new year, but quite frankly, I am struggling.
Cal got sick two days after Christmas. He came down with a terrible cough and was congested. Quite honestly, it is what we have feared for awhile. The doctors have told us that kids with "mito" have a very weak immune system. We have known he can't get sick because his little body will have a hard time getting over it. That is why we stay home a lot. However, we also knew there was a good possibility this would be our last Christmas with Cal....so we loaded him up in the car and went and had Christmas with our families. We made it the best Christmas it could be considering the circumstances. The hospice nurse has assured us that he didn't get sick because we took him out of the house for Christmas.
As far as the cough and congestion go, it has gotten better. At first, he was so congested, he was choking on his saliva. No parent should have to experience that....it is terrifying! He did that for two days, and then, the medicine began to kick in, and he cleared up a little. However, it isn't gone for good. It is still there, but we are keeping it under control with medicine. The nurse is coming out daily to check on him. He is also having some other issues of concern, but unfortunately, there is no medicine for those issues. We just have to keep monitoring him and most importantly LOVING him!
It has definitely been a rough and emotional week for us. We continue to lean on God to guide us each day and give us the strength we need to care for Cal. Only He knows the plan for all of us!
Words can not express our gratitude and appreciation for all the love and support we continue to get from family and friends.
In His Name,
Courtney
Cal got sick two days after Christmas. He came down with a terrible cough and was congested. Quite honestly, it is what we have feared for awhile. The doctors have told us that kids with "mito" have a very weak immune system. We have known he can't get sick because his little body will have a hard time getting over it. That is why we stay home a lot. However, we also knew there was a good possibility this would be our last Christmas with Cal....so we loaded him up in the car and went and had Christmas with our families. We made it the best Christmas it could be considering the circumstances. The hospice nurse has assured us that he didn't get sick because we took him out of the house for Christmas.
As far as the cough and congestion go, it has gotten better. At first, he was so congested, he was choking on his saliva. No parent should have to experience that....it is terrifying! He did that for two days, and then, the medicine began to kick in, and he cleared up a little. However, it isn't gone for good. It is still there, but we are keeping it under control with medicine. The nurse is coming out daily to check on him. He is also having some other issues of concern, but unfortunately, there is no medicine for those issues. We just have to keep monitoring him and most importantly LOVING him!
It has definitely been a rough and emotional week for us. We continue to lean on God to guide us each day and give us the strength we need to care for Cal. Only He knows the plan for all of us!
Words can not express our gratitude and appreciation for all the love and support we continue to get from family and friends.
In His Name,
Courtney
Subscribe to:
Posts (Atom)