After a lot of prayer and discussion with our families, we have made the decision to bring in hospice for Cal. It was not an easy decision to make. However, with Cal's discomfort increasing, we knew in our hearts this was the right decision.
When we met with Dr. McKenzie two weeks ago and she mentioned hospice, I struggled with the thought of it because I thought as soon as they came in we wouldn't have long with Cal. Since then, I have learned that is not the case. They will provide Cal with medicine and equipment (if needed) to keep him comfortable, and that is our main purpose right now...comfort.
With that being said, I made the call on Monday and we got an appointment for yesterday afternoon. A registered nurse and a child life specialist came to our home to visit with us. The RN was an older gentleman that was very kind and soft spoken. He explained everything to us about the company. They have a pediatric team that will be assigned to Cal. We do not need round the clock care at this point, but the care is there when the time comes. We will start out with a primary nurse that will check on Cal once a week to make sure the medicine is keeping him comfortable.
It was a sad day yesterday because reality was setting in for our family. Cal is not getting better. He is getting worse. However, in the midst of our tears, I felt peace. I have prayed long and hard about whether or not to bring hospice in, and I know we made the right decision.
We appreciate all the love, support, and prayers we continue to get from near and far.
I just wanted to let you know that my family and I are praying for you during this difficult time. May God bring you the peace and comfort that you need during this difficult time. Nolan, Stephenie, Michael and Braiden
ReplyDeleteWe are praying for you, Marcus, Cal and your family during this difficult time. Our pray is that God brings comfort and peace to you during this time. May you feel wrapped in God's lovig arms when things get tough. Praying you remain strong but knowing you can lean on God, family and friends. Liz, John, Katie and Kristina
ReplyDeleteWanted to introduce myself and let you know that your family is in our prayers. We have dealt with Mito and have experienced the full cycle. It's a very difficult disease to watch your little one suffer with.
ReplyDeleteI wanted to offer our support and love.