After a lot of prayer and discussion with our families, we have made the decision to bring in hospice for Cal. It was not an easy decision to make. However, with Cal's discomfort increasing, we knew in our hearts this was the right decision.
When we met with Dr. McKenzie two weeks ago and she mentioned hospice, I struggled with the thought of it because I thought as soon as they came in we wouldn't have long with Cal. Since then, I have learned that is not the case. They will provide Cal with medicine and equipment (if needed) to keep him comfortable, and that is our main purpose right now...comfort.
With that being said, I made the call on Monday and we got an appointment for yesterday afternoon. A registered nurse and a child life specialist came to our home to visit with us. The RN was an older gentleman that was very kind and soft spoken. He explained everything to us about the company. They have a pediatric team that will be assigned to Cal. We do not need round the clock care at this point, but the care is there when the time comes. We will start out with a primary nurse that will check on Cal once a week to make sure the medicine is keeping him comfortable.
It was a sad day yesterday because reality was setting in for our family. Cal is not getting better. He is getting worse. However, in the midst of our tears, I felt peace. I have prayed long and hard about whether or not to bring hospice in, and I know we made the right decision.
We appreciate all the love, support, and prayers we continue to get from near and far.